Supplementary Material for: Assessing the Impact of Atopic Dermatitis on the Patients' Parents with the Visual Instrument ‘Caregiver-PRISM'
2016-08-24T13:52:03Z (GMT) by
<p><b><i>Background:</i></b> There is a need to improve the quality of communication between clinicians and parents of young patients with atopic eczema (AE). <b><i>Objective:</i></b> To create a tool to measure the suffering that caregivers experience in association with their child's AE (Caregiver Pictorial Representation of Illness and Self-Measure, Caregiver-PRISM), assess the validity and reliability, and identify factors associated with caregiver suffering. <b><i>Methods:</i></b> Caregiver-PRISM was administered to 45 parents of patients from an AE outpatient service (Padua, Italy). <b><i>Results:</i></b> Caregiver-PRISM had a good test-retest reliability (r = 0.85; t<sub>7</sub> = 4.13; p < 0.05), content validity and construct validity when used in parents of AE children. Parents with a less positive family affective climate, higher education, or with children following a diet experienced higher suffering associated with their child's AE, demonstrated by lower Caregiver-PRISM scores (p < 0.05). <b><i>Conclusion:</i></b> Our results support the use of Caregiver-PRISM in parents of AE patients to assess suffering associated with patients' illness.</p>